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Patient Summaries


Collaborate on the various aspects of creating, distributing and consuming a health records summary for a patient.
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Collaborate on the various aspects of creating, distributing and consuming a health records summary for a patient.

About

Welcome to the Patient Summary Working Group

The purpose of this working group is to collaborate on the various aspects of creating, distributing and consuming a health records summary for a patient.

Part of this work will include a definition of what a meaningful health summary should be in the Canadian context, what elements it should include, the standards to be used in its definition and the technical interoperability considerations to support its life cycle.

There are a number of international initiatives that deal with summaries (e.g. IPS). This working group will analyze alignment of those specifications to the expected clinical scenarios that are expected in the Canadian context.

The pan-Canadian interoperability specificaitons and information about testing events (i.e., the Projectathon) can be found on InfoScribe. Notifications about upcoming events will be served through the Forums in this working group.

Welcome once again, please check out the group calendar for upcoming events and the Forum feeds for ongoing conversations.

Activity

Jussara Rötzsch joined a group

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Collaborate on the various aspects of creating, distributing and consuming a health records summary for a patient.

Ken Sinn created a new discussion in Patient Summaries

Hi all, We have made a few hotfixes to the PS-CA FHIR Package, which currently is at ... . The key changes since version 2.0.0 DFT-Ballot: Patient.identifier slicing has changed from fixedCodeableConcept to patternCodeableConcept The ValueSet.version for Substance Code and Pharmaceutical/Biologic Product Code has changed from a date format (20240204) to semantic versioning (1.0.0) Patient.identifier slicing has changed from fixedCodeableConcept to patternCodeableConcept - fixedCodeableConcept requires that the Patient.identifier.type match the follow exactly ... - systems that send the following would experience unintended rejections, since it is not an exact match: ... The slicing definition has been changed to a patternCodeableConcept, which allows for a successful slice match even if extra fields are sent The ValueSet.version for Substance Code and Pharmaceutical/Biologic Product Code has changed from a date format (20240204) to semantic versioning (1.0.0) - The Canadian Terminology Service is now live in production, and the HL7 Terminology Server (tx.fhir.org) will reroute terminology queries/validations for Canadian terminologies (e.g. fhir.infoway-inforoute.ca VSets, SNOMED CT-CA) to the CA TxService (See https://tx.fhir.org/tx-reg/ for the list of terminologies where tx.fhir.org will reroute terminology calls) - The ValueSets on Tx Gateway historically used a date format versioning. The migration to CA Tx Server included changing to semantic versioning. - The ValueSet stubs in the PS-CA Package on Simplifier uses a date format versioning, aligning with the Tx Gateway (from before) - The PS-CA SubstanceAndPharmaceuticalBiologicProductCode ValueSet is a defined in the PS-CA package as a composite of sub-ValueSets SubstanceCode ValueSet and the PharmaceuticalBiologicProductCode ValueSet - When HL7 Validator or HL7 IG Publisher tries to evaluate the superset SubstanceAndPharmaceuticalBiologicProductCode, it sees two SubstanceCode ValueSets – the local one with YYYYMMDD and the TxServer one with X.Y.Z, and doesn’t know which one to use, and throws an error - The fix for this is to align the ValueSet version formatting in PS-CA to use the semantic version, along with backdated publication date (1900-01-01) so that tooling can easily identify which ValueSet copy to use (the newer one on TxServer) - The ValueSet version change for the PS-CA 2.0.3 DFT-Ballot is limited to the three impacted ValueSets, but will likely expand to all ValueSets in a future PS-CA release Happy to help answer any questions or concerns you might have. If you experience the above issues with the current PS-CA 2.0.0 DFT-Ballot, you can adopt the 2.0.3 DFT-Ballot package to resolve these issues.

Sadrina Petit created a new discussion in Patient Summaries

Dear Participants, We would like to take this opportunity to thank you for your interest and commitment to participating in the first Canadian hosted, Connectathon Week. The response has been tremendous with all four events completely sold out! As we near the start of an incredible week of programming and testing, we wanted to share some important details with you to help you plan your week. Follow this link for logistics and schedule details: ... Best Regards, The 2025 IHE North American Connectathon Planning Team

Helen Du joined a group

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Collaborate on the various aspects of creating, distributing and consuming a health records summary for a patient.

Allana Cameron created a new discussion in Patient Summaries

Join us at the Plugathon for an exciting 2.5-day event highlighting the International Patient Summary (IPS)! The pan-Canadian Patient Summary, as an adaptation of the IPS, will be highlighted in the IPS Track. Track 2: IPS & Patient-Mediated Access - Discover how IPS empowers patients with control over their health data and enables secure information exchange. Contribute your insights to the evolution of this critical standard and collaborate with experts from around the globe. Over the 2.5 days, you will learn about and have an opportunity to contribute to discussions on: IPS implementations around the globe IPS Innovations and Emerging Standards What patients and clinicians are saying about sharing patient summaries Global and National insights on how the Patient Summary overlaps and impacts other use cases Hands-on Workshops for IPS toolsets Combined sessions to discuss how the Patient Summary intersects with AI (Track 4) and Trust Frameworks (Track 5) Don't miss this opportunity to shape the future of digital health and patient-mediated access! ? For the full schedule and more details, check out this .... I am thrilled to be the track lead for this amazing line-up of sessions and I hope to see you there! Haven't registered yet? It's not too late! Register .... Sincerely, Allana

Events



Upcoming events:

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Forum

PS-CA 2.0.3 DFT-Ballot Hotfix FHIR Package Release 02/03/25

Hi all, We have made a few hotfixes to the PS-CA FHIR Package, which currently is at ... . The key changes since version 2.0.0 DFT-Ballot: Patient.identifier slicing has changed from fixedCodeableConcept to patternCodeableConcept The Va...

Connectathon Week Welcome Package 01/31/25

Dear Participants, We would like to take this opportunity to thank you for your interest and commitment to participating in the first Canadian hosted, Connectathon Week. The response has been tremendous with all four events completely sold out!...

Exciting IPS Discussions Await at the Plugathon – Check Out the Full Schedule! 01/15/25

Join us at the Plugathon for an exciting 2.5-day event highlighting the International Patient Summary (IPS)! The pan-Canadian Patient Summary, as an adaptation of the IPS, will be highlighted in the IPS Track. Track 2: IPS & Patient-Mediated Acces...

Plugathon Registration Extended to January 17th! 01/09/25

Hello everyone, Great news! The registration for the Plugathon has been extended until January 17th. This provides additional time for anyone interested in joining to register and prepare. For those planning to attend, please use the ... to com...

Weekly Office Hours for Projectathon Support 12/19/24

Hello everyone, We’re excited to announce our weekly Office Hours sessions, starting Tuesday, January 7, 2025, from 2:00 PM to 4:00 PM EST. These sessions will run every Tuesday leading up to the Projectathon and provide a dedicated space for part...

Join Us for the 2025 PSWG Kick-Off Meeting on January 7th! 12/19/24

Hello PSWG members! As we wrap up 2024, we want to wish everyone a safe and happy holiday season! ? 2025 is already shaping up to be an exciting year for the Patient Summary, and we can't wait to kick things off with you. Please join us for our 2...

Book Your Stay for Connectathon 2025! 12/16/24

Hello everyone, Make the most of your Connectathon 2025 experience by staying at the InterContinental Toronto Centre, our official event hotel. Located steps from the Metro Toronto Convention Centre and Toronto’s top attractions, this luxury hotel...

Recording and Presentation Deck of the Pre-Projectathon Webinar Now Available 12/10/24

Hello everyone, Thank you to everyone who joined the Pre-Projectathon Webinar on December 9, 2024! We appreciate your participation and engagement during the session. For those who missed it, the recording is now available here: ... Additionall...

Schedule Update for the PS-CA v2.0.0 DFT-Ballot Open Review Period 12/04/24

Hello PSWG Members, There is a flurry of exciting activity underway with PS-CA Projectathon and Plugathon preparations, as well as Patient Summary limited production rollout progress. To allow for optimal use of time and collection of new learning...

Local, National & Global Patient Summary Testing and Collaboration! 11/28/24

Hello PSWG members! As we look at the calendar and see November 28, 2024, it's hard to believe how quickly this fall season has flown by and that 2024 is almost over! Reflecting on the past year, we've witnessed incredible progress with the Patien...

Join the Pre-Projectathon Testing Webinar on December 9th! 11/26/24

Join the Pre-Projectathon Testing Webinar on December 9th! Are you registered for, or interested in, the upcoming Pan-Canadian Projectathon, part of the IHE North America Connectathon Week? Don’t miss this essential webinar to ensure you’re full...

IHE Canada Community Webinar Nov 2024 Materials 11/21/24

Hi all, Thank you for attending the November 21, 2024, IHE Canada Community Webinar, focused on "What Goes on in an IHE Connectathon/Projectathon/Plugathon?". The presentation material is now available here: .... A recording of the meeting...

Join the 2025 pan-Canadian Projectathon! 10/17/24

Join the 2025 pan-Canadian Projectathon! Get ready to accelerate your pan-Canadian interoperability readiness. This event brings together stakeholders from across Canada to test and validate their systems for seamless integration nationwide. Throu...

Release Announcement: PS-CA v2.0.0 DFT-Ballot Now Available 10/16/24

Hello Everyone, PS-CA v2.0.0 DFT-Ballot has been published for stakeholders to begin working with in preparation for the upcoming Projectathon in February 2025. This release allows stakeholders to gain experience between October and December 2024...

CIHI Launches Draft Pan-Canadian Health Data Framework and CACDI for Open Review 10/01/24

CIHI wants to hear from you! We are pleased to announce the launch of the: • Draft Pan-Canadian Health Data Content Framework Version 1, September 2024 • Draft CACDI Version 1, September 2024, aligned with CA Core+ v0.3.0 and • Open Review....

Documents

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Meeting Minutes ( 12 Documents )

Presentations ( 16 Documents )

Shared Files ( 12 Documents )

Release Review - Interoperability Specifications - 20220920

Published on Sep 20, 2022 by Allana Cameron

Slide deck from Day 3 of PS-CA Projectathon

Published on Mar 24, 2022 by Attila Farkas

Connectivity Testing Webinar Deck - Mar 1 2022

Published on Mar 01, 2022 by Allana Cameron

Projectathon Tooling Webinar Deck - Feb 25 2022

Published on Feb 25, 2022 by Allana Cameron

Pre-Projectathon Testing Webinar Deck - Feb 17 2022

Published on Feb 17, 2022 by Samantha Zaffino

Projectathon Registration Webinar Deck - Jan 20 2022

Published on Feb 17, 2022 by Samantha Zaffino

Patient Summary Q&A - Approach to FHIR: Meeting Minutes

Published on Sep 27, 2021 by Allana Cameron

Patient Summary Q&A - Approach to FHIR (Presentation)

Published on Sep 27, 2021 by Allana Cameron

Draft Pan-Canadian Patient Summary MDS V0.50

Published on Aug 09, 2021 by Faizah Haleem

Alberta's Patient Summary Data Dictionary - ver0.4

Published on Aug 05, 2021 by Allana Cameron

IHE 101 webinar

Published on Jul 28, 2021 by Attila Farkas

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