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Sex and Gender


Canadians working together to modernize Canada’s sex and gender information practices in digital health.
Members: 137
Contact: Joanie Harper
Type: Open
Access: Public
Canadians working together to modernize Canada’s sex and gender information practices in digital health.

About

Infoway Sex and Gender Working Group

Infoway's Sex-Gender Working Group (SGWG) has been convening since 2019 to modernize gender, sex and sexual orientation (GSSO) information practices in Canada. Meetings are held on the fourth Tuesday of each month at 12 ET / 9 PT for one hour.

The SGWG was established in late 2019 with the support and participation of Canada Health Infoway, CIHI, CHIMA, the University of Victoria and many others. Since then, we have grown to well over 100 registrants who continue this work through regular collaboration, research and discussion.

In early 2021, the SGWG produced "A Proposed Action Plan to Modernize Gender, Sex and Sexual Orientation Practices in Canadian EHRs" which lists seven primary aims, and form the foundation for this ongoing work.

Bring your knowledge and experience to this working group to develop an implementation strategy to modernize sex and gender information practices in EHR systems in Canada.

Additional details:

  • Meeting notes and documentation can be found in the Documents folder.
  • Registration is required for this working group, and registration is valid for all future sessions.
  • A draft agenda will be posted to the group forum about five days in advance of the meeting.
  • Please register for an InfoCentral account and subscribe to receive notifications from the forum and other group activities.

*Note: Group icon represents different sex and gender identities but is not inclusive.

Activity

Sanjin Sabljakovic joined a group

Sex and Gender Logo
Canadians working together to modernize Canada’s sex and gender information practices in digital health.

Jacqueline Singer joined a group

Sex and Gender Logo
Canadians working together to modernize Canada’s sex and gender information practices in digital health.

Janice Spence created a new discussion in Sex and Gender

Hello SGWG Members, Infoway would like to solicit feedback from this group on a proposal from the US ONC to inactivate or remodel the following concepts with the rationale that they are conflating sex and numeric ranges and their questionable usefulness in the EHR today. SNOMED International would like input from Canada and Australia as well before proceeding with the change request. o 302081005 |Finding of sex of baby (finding)| o 169839008 |Baby female (finding)| o 169838000 |Baby male (finding)| o 169842002 |One male and one female baby (finding)| o 169845000 |One male and two female babies (finding)| o 169846004 |Three female babies (finding)| o 169843007 |Three male babies (finding)| o 169841009 |Two female babies (finding)| o 169844001 |Two male and one female babies (finding)| o 169840005 |Two male babies (finding)| Is anyone using these concepts for any sex and gender information capture and would there be any input on the two options before us: 1. Inactivate the concepts OR 2. Remodel these concepts and remove them from the subhierarchy of "Finding related to biological sex" and place them instead under a more appropriate subhierarchy such as "Finding of birth outcome". We kindly ask for feedback in this forum by Jun 3rd Thank you in advance! Regards, Janice

Janice Spence joined a group

Sex and Gender Logo
Canadians working together to modernize Canada’s sex and gender information practices in digital health.

Kelly Davison created a new discussion in Sex and Gender

Hi Folks, A gentle reminder about the SGWG meeting on May 28, 2024 at 12 ET / 9 PT. We will be reviewing our progress on the Proposed Action Plan to Modernize Gender, Sex and Sexual Orientation in Canadian Electronic Health Record Systems Link to document here: https://infocentral.infoway-inforoute.ca/en/resources/docs/3496-gsso-action-plan-full-document/view-document Here is the draft agenda: 1. Welcome and Land Acknowledgement 2. Ground rules for respectful dialogue 3. Purpose of Infoway Sex and Gender Working Group 4. Update on the Action Plan 5. Schedule Review 6. Reminders & Adjournment Please send any agenda requests to Kelly at [email protected], Karen at [email protected] or Shannon at [email protected]. If you are new to the SGWG, please use this link to register: infoway-inforoute.zoom.us/meeting/register/tZIqf-yoqjIpGtFrqu1R8-9WMY1j8oDWjXZl Also, please note our guidelines for respectful dialogue. - Express disagreement with ideas not personalities - Share airtime - Stay on topic - connect to what others have said - Understand & learn from each other - We are all equal. Leave rank at the door - Listen respectfully especially when you disagree. Acknowledge you have heard the others - Look for common ground - Identify & test assumptions Thank you! Kelly Davison RN, CTSS

Marcia Jeffers joined a group

Sex and Gender Logo
Canadians working together to modernize Canada’s sex and gender information practices in digital health.

Marie-Chantal Ethier joined a group

Sex and Gender Logo
Canadians working together to modernize Canada’s sex and gender information practices in digital health.

Events



Upcoming events:

Tue Jun 25 @12:00PM - 01:00PM
Sex-Gender Working Group
Tue Jul 23 @12:00PM - 01:00PM
Sex-Gender Working Group
Tue Aug 27 @12:00PM - 01:00PM
Sex-Gender Working Group

Forum

Feedback requested on Sex and Gender SNOMED CT concepts flagged for inactivation 05/27/24

Hello SGWG Members, Infoway would like to solicit feedback from this group on a proposal from the US ONC to inactivate or remodel the following concepts with the rationale that they are conflating sex and numeric ranges and their questionable usef...

SGWG Meeting May 28, 2024 @ 12 ET/ 9 PT 05/23/24

Hi Folks, A gentle reminder about the SGWG meeting on May 28, 2024 at 12 ET / 9 PT. We will be reviewing our progress on the Proposed Action Plan to Modernize Gender, Sex and Sexual Orientation in Canadian Electronic Health Record Systems Li...

FYI Forwarded message regarding upcoming apology from Canadian Blood Services 05/09/24

Subject: Apology from CBS to 2SLGBTQIA communities Greetings, Canadian Blood Services is grateful to the many 2SLGBTQIA+ organizations, communities and individuals who have worked alongside us for years to drive and influence change within Canad...

SGWG Meeting April 23, 2024 @ 12 ET/ 9 PT 04/23/24

Hi Folks, The slide decks and notes have been posted to the SGWG documents folder at the following link: infocentral.infoway-inforoute.ca/en/collaboration/wg/sex-gender Many thanks for your attendance and participation today, and many thanks to...

SGWG Meeting April 23, 2024 @ 12 ET/ 9 PT 04/17/24

Hi Folks, A gentle reminder about the SGWG meeting on April 23, 2024 at 12 ET / 9 PT. Nicole Blum has kindly agreed to join us on this call to discuss representing gender in genetic counseling practice and records. Should be very interesting!...

Open Review of the Pan-Canadian Health Data Content Framework 03/27/24

CIHI wants to hear from you! Help shape the future of health data standards in Canada. The Pan-Canadian Health Data Content Framework is now available for Open Review. The Framework lays the foundation for Connected Care in Canada by outlining the da...

Reminder: SGWG Meeting March 26, 2024 @ Noon ET/9am PT 03/26/24

Hi Folks, The slide decks and notes have been posted to the SGWG documents folder at the following link: https://infocentral.infoway-inforoute.ca/en/collaboration/wg/sex-gender Many thanks for your attendance and participation today, and many...

Reminder: SGWG Meeting March 26, 2024 @ Noon ET/9am PT 03/24/24

Hi everyone, A gentle reminder about the SGWG meeting on March 26, 2024 at 12 ET / 9 PT. Mikayla Hunter and Morgan Stirling will present on gender and sexual minority representation in cancer research. Here is the draft agenda: 1. Welcome an...

February 27, 2024 SGWG Meeting Materials 02/28/24

Greetings folks, Thanks for meeting today. The notes and slide decks from the meeting are posted to the documents folder on InfoCentral. Here is the link: https://infocentral.infoway-inforoute.ca/en/resources/docs/sex-gender/2024-sessions Than...

Survey Reminder 02/27/24

Hi SG members, Just a reminder to complete this short survey by tomorrow to help us understand how to make our working groups more meaningful. Survey link: ... Thank you,

SGWG Feb 27 2024meeting @ Noon ET/9am PT 02/20/24

Hi Folks, A gentle reminder about the SGWG meeting on February 27, 2024 at 12 ET / 9 PT. Shannon O'Connor will discuss next steps for pan-Canadian GSSO standards engagement and Kelly Davison will present an update on the HL7 Anatomical Inventories...

Survey: InfoCentral Community user experience 02/15/24

Hello Sex and Gender Community! Infoway has initiated the Digital Front Door project intended to produce a list of recommendations for strengthening all of our portals to resources. InfoCentral is the central portal for key stakeholders. For this...

SGWG January 22 2024 meeting @ Noon ET/9am PT 01/15/24

Hi Folks, A gentle reminder about the SGWG meeting on January 23, 2024 at 12 ET / 9 PT. Dr. Tyrone Curtis will be presenting his research on and leading our group in discussion of the implications of sexual orientation identity and sexual orienta...

HL7 INTERNATIONAL ANATOMICAL INVENTORIES AND PERSON CHARACTERISTICS PROJECT 01/10/24

Greetings folks, If you represent an organization or vendor that has an interest in or requirement for implementing Anatomical Inventories (once developed) in alignment with the Gender Harmony Informative Model/Cross-Paradigm Implementation Guide,...

ISO Technical Report on Sex and Gender in the EHR is now published 12/22/23

Hi ISO does not allow the sharing of completed ISO standards and Technical Report documents. If you would like to email me separately I would be happy to give you an overview. [email protected] thankyou for your interest beverly

Documents

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2020 Sessions ( 38 Documents )

2021 Sessions ( 36 Documents )

2022 Sessions ( 30 Documents )

2023 Sessions ( 27 Documents )

2024 Sessions ( 15 Documents )

Action Plan ( 4 Documents )

CIHR Planning Project ( 20 Documents )

ISO Documents ( 0 Document )

This folder holds working and in-progress research and documentation which outlines outdated GSSO content that is considered harmful.

MSFHR REACH Project ( 20 Documents )

Publications & Reports ( 3 Documents )

Working Documents ( 6 Documents )

Video

This Group has no videos.

Members

Joanie Harper
Picture of Joanie Harper
Canadian Institue for Health Information
OFFLINE
Contact
Kelly Davison
Picture of Kelly Davison
University of Victoria
OFFLINE
Admin
Karen Courtney
Picture of Karen Courtney
University of Victoria
OFFLINE
Admin
Linda Monico
Picture of Linda Monico
Canada Health Infoway
ONLINE
Admin
Francis Lau
Picture of Francis Lau
University of Victoria
OFFLINE
Admin
Sanjin Sabljakovic
Picture of Sanjin Sabljakovic
Ontario Health
OFFLINE
Member
Jacqueline Singer
Picture of Jacqueline Singer
CIHI
OFFLINE
Member
Janice Spence
Picture of Janice Spence
Canada Health Infoway
OFFLINE
Member
Marcia Jeffers
Picture of Marcia Jeffers
Centre for Distance Education
OFFLINE
Member
Marie-Chantal Ethier
Picture of Marie-Chantal Ethier
CIHI
OFFLINE
Member
Erica Withey
Picture of Erica Withey
CIHI
OFFLINE
Member
Michael Kruse
Picture of Michael Kruse
McMaster University
OFFLINE
Member
Sameer Nizamuddin
Picture of Sameer Nizamuddin
University of Calgary
OFFLINE
Member
john queenan
Picture of john queenan
Queen's University
OFFLINE
Member
Florian Ehrensperger
Picture of Florian Ehrensperger
Providence Health Care
OFFLINE
Member

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