Sex and Gender

Hi Folks, The slide decks from this month's meeting are now posted to the Documents folder here. infocentral.infoway-inforoute.ca/en/resources/docs/sex-gender/2025-sessions Thank you for your continued participation! Kelly

We are excited to announce an upcoming 1-hour webinar on Digital Research Infrastructure (DRI) and the Results of the Gender, Sex and Sexual Orientation Digital Health Hub (‘the GSSO Digital Health Hub’) Project, which will take place on March 28, 2025, at 12:00 PM PT / 3:00 PM ET. In this webinar, we will present the key findings and outcomes of our Digital Research Alliance of Canada grant-funded project focused on leveraging DRI to advance inclusive, equity-oriented digital health systems and standards in Canada. Attendees of this webinar will gain insights into open science, Canadian DRI, best practices and lessons learned from the initial development of the GSSO Digital Health Hub and practical tools and methods for fostering inclusivity in information practices. This is a unique opportunity for professionals and researchers to explore the transformative potential of open science and DRI in advancing equity within healthcare systems. We would be grateful if this announcement could be published in your upcoming newsletter, website, or other communication channels. If you require additional details or promotional materials, please do not hesitate to contact us. Thank you for supporting this important initiative, and we look forward to welcoming your members to the webinar. Warm regards, Kelly Davison RN, Doctoral Candidate Project Lead, GSSO Digital Health Hub University of Victoria, Canada [email protected] Event Details: • Title: Canadian Digital Research Infrastructure, Open Science and the GSSO Digital Health` Hub • Date/Time: March 28, 2025, 12:00 PM PT / 3:00 PM ET • Duration: 1 Hour • Registration: https://uvic.zoom.us/webinar/register/WN_omCmnsoGQWu8BmSRZCIO6Q

Hello, Ontario Health will be hosting an Open Review webinar on March 27, 2025, @ 12:00-1:00pm (EST) to provide details on the Ontario Mental Health and Addictions Provincial Data Set HL7® FHIR® v. 2.0 Interoperability Specification, explain the process of providing coordinated comments during the Open Review period, and answer questions. The Ontario Mental Health and Addictions Provincial Data Set HL7 FHIR Implementation Guide is designed to support implementers in submitting data from health service providers in the mental health and addictions domain to the Mental Health and Addictions Provincial Data Set (MHA PDS) Repository. The MHA Provincial Data Set is a minimum set of standardized, client-level data elements that are routinely collected to support direct service delivery. Version 2.0 of the implementation guide is an update to the existing specification with enhancements to expanded data collection to include Children and Youth Mental Health (CYMH) and Community Addictions services. Key Dates: Open Review Period: March 27 – April 30, 2025. Join us by following the link below: ... Please share this information with your team and colleagues to encourage participation in this important process. Thank you, Digital Health Interoperability Standards Committee Secretariat Ontario Health

I have added the HL7 Anatomical Inventories and Person Characteristics Informative Model ballot to the agenda.

***Please Share Widely*** Hello Everyone, A quick reminder about our upcoming meeting at **9:00 AM PT / 12:00 PM ET on March 25, 2025**. We have a very special session planned, featuring a panel discussion on Patient-Controlled Data with two distinguished guests: L Weaver, Postdoctoral Fellow at the University of Utah and Adela Grando, PhD, FACMI, FAMIA, Associate Professor of Biomedical Informatics at Arizona State University About Our Panelists L Weaver is a first-year Postdoctoral Fellow at the University of Utah. Their prior research focused on medical records and health data for underserved populations, documenting unique data practices and EHR interventions to improve provider interactions. This involved interviews with healthcare providers, researchers, software developers, and patients on friction points, marginalia, social histories, work-arounds, and proposed solutions. Currently, L applies large data approaches—using machine learning and natural language processing—to uncover disparities in care for marginalized populations, exploring how patient-provider interactions affect outcomes and the health records generated by providers.. Dr. Adela Grando is an Associate Professor of Biomedical Informatics and Director of Research Education at Arizona State University’s College of Health Solutions, as well as an Adjunct Assistant Professor at Mayo Clinic. Trained in the US, Europe, and Latin America (including UC San Diego, Oxford, and Edinburgh), her expertise lies in consumer health informatics. Dr. Grando applies computer science to medicine, developing technologies that empower patients’ healthcare decisions—particularly those often excluded from research, such as Latinx communities and individuals with behavioral health conditions. Panel Background In recent years, health and government information systems have made gender variance more visible in records. However, being “counted” can create new vulnerabilities for transgender and gender-diverse communities. This discussion will provide evidence for the need to adapt recordkeeping structures to safeguard against hostile uses, systemic bias, and structural violence. The panel will close with a call to engage healthcare standards in supporting patient-controlled record review and sharing. Draft Agenda 1. Welcome and Land Acknowledgement 2. Ground Rules for Respectful Dialogue 3. Purpose of Infoway Sex and Gender Working Group 4. Panel Discussion: Patient-Controlled Data 5. GSSO Digital Health Hub 6. Schedule Review 7. Adjournment Please send any agenda requests to Kelly mailto:[email protected], Karen mailto:[email protected], or Shannon mailto:[email protected]. New to the Sex and Gender Working Group? Register here: https://infoway-inforoute.zoom.us/meeting/register/tZIqf-yoqjIpGtFrqu1R8-9WMY1j8oDWjXZl Guidelines for Respectful Dialogue - Focus on ideas, not personalities - Share airtime - Stay on topic—connect with what others have said - Understand and learn from one another - We are all equal—leave rank at the door - Listen respectfully, especially if you disagree. Acknowledge others’ perspectives - Look for common ground - Identify and test assumptions We look forward to seeing you on March 25! Thank you, Kelly

Hi Folks, The slide decks from this month's meeting are now posted to the Documents folder here. infocentral.infoway-inforoute.ca/en/resources/docs/sex-gender/2025-sessions Thank you for your continued participation! Kelly

You are invited to participate in a study titled Championing the use of Digital Research Infrastructure amongst nursing researchers in Canada: Sex-Gender Digital Health Equity Research Hub proof of concept and knowledge dissemination to national nursing associations that is being conducted by Kelly Davison. In this project, we are developing the gender, sex and sexual orientation (GSSO) Digital Health Hub. Why? This work has been initiated by researchers from the University of Victoria Digital Health Equity Group in response to Action 7 of the ... to Modernize Gender, Sex and Sexual Orientation Practices in Canadian Electronic Health Records (2021). Kelly Davison, RN, CTSS is leading the project. Professor Karen Courtney, PhD, is supervising the research component. Who can participate? This is a collaborative project aimed at advancing equity-oriented digital health systems and standards and will require diverse voices. We particularly encourage participation from equity-deserving groups such as Indigenous Peoples, 2SLGBTQQIA+ individuals, and women, in addition to digital health standards experts, researchers, allies, and healthcare providers. What can I expect? You are invited to a series of three 55-minute community dialogue/Hub development sessions held at 12 PT/3 ET on March 12th, 14th and 17th, 2025 with members of the GSSO standards community. You may attend one, two or all three of the sessions. During these sessions, you will help co-develop the GSSO Digital Health Hub while learning about open science tools and resources, open tooling, and Digital Research Alliance of Canada Digital Research Infrastructure. Honouraria will not be provided. Thank you for considering this opportunity to help create a more inclusive and equitable digital health ecosystem. I look forward to the possibility of working with you on this important initiative. Should you wish to participate, please register using the link below or email Kelly Davison at [email protected] to receive additional information. Warm regards, Kelly Davison RN, CTSS Here is the registration link: https://uvic.zoom.us/meeting/register/40pRS68mQ_uIjcVQvbCwLw