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Sex and Gender


Canadians working together to modernize Canada’s sex and gender information practices in digital health.

About

Infoway Sex and Gender Working Group

Infoway's Sex-Gender Working Group (SGWG) has been convening since 2019 to modernize gender, sex and sexual orientation (GSSO) information practices in Canada. Meetings are held on the fourth Tuesday of each month at 12 ET / 9 PT for one hour.

The SGWG was established with the support and participation of Canada Health Infoway, the Canadian Institute for Health Information, the Candian Health Information Management Association, the University of Victoria, Canadian jurisdictions such as Nova Scotia, British Columbia, Ontario and many others. Since then, we have grown to well over 100 registrants who continue this work through regular collaboration, research and discussion.

In early 2021, the SGWG produced "A Proposed Action Plan to Modernize Gender, Sex and Sexual Orientation Practices in Canadian EHRs" which lists seven primary aims. These aims form the foundation for this ongoing work.

Bring your knowledge and experience to this working group to develop an implementation strategy to modernize sex and gender information practices in EHR systems in Canada.

Additional details:

  • Meeting notes and documentation can be found in the Documents folder.
  • Registration is required for this working group, and registration is valid for all future sessions.
  • A draft agenda will be posted to the group forum about five days in advance of the meeting.
  • Please register for an InfoCentral account and subscribe to receive notifications from the forum and other group activities.

*Note: Group icon represents different sex and gender identities but is not inclusive.

Activity

Karen Courtney created a new discussion in Sex and Gender

Forwarding a message about an open survey that may be of interest Hello! I hope this e-mail finds you well. I am sharing the 2025 Sex Now survey with you all. This survey is administered by the Community-Based Research Centre (CBRC), which promotes the health of people of diverse sexualities and genders through research and intervention development. Sex Now is Canada’s largest and longest-running health survey for 2S/LGBTQ+ people today. Participation in Sex Now helps the CBRC collect vital data that shapes public health policies and community services. For the first time, the Sex Now survey is open to 2S/LGBTQ+ people of all genders. This year’s survey includes questions about organ and tissue donation, immigration experiences, gambling, and access to gender affirming care. In a culture of rising anti-2S/LGBTQ+ hate, the survey will also feature questions about the impacts of stigma and discrimination in relation to our social, mental, and sexual well-being. If you would like to participate, you can fill out Sex Now 2025 .... The survey is available to be taken in English, French, and Spanish, and takes about 30 minutes to complete. If you are willing to share this e-mail with your networks, that would be most appreciated! Thanks,

Karen Courtney created a new discussion in Sex and Gender

Hi The School of Health Information Science at the University of Victoria is hosting a 3 day Virtual Workshop on Health Information Exchange (HIE) standards. The workshop will be held over 3 days from 4pm till 6:30pm Pacific Time on Monday April 28th to Wednesday April 30th. Guest speakers from across Canada will be presenting on a variety of HIE-related topics, including the shared pan-Canadian interoperability roadmap, CIHI standards, Health Infoway standards, and HL7 FHIR. There is no cost to attend. For more information and to see the schedule of talks, please go ... Thanks, Karen

Shannon O'Connor replied to a discussion in Sex and Gender

Hello everyone, The slide decks from this month's meeting are now posted to the Documents folder here: infocentral.infoway-inforoute.ca/en/resources/docs/sex-gender/2025-sessions Have a great weekend! Thank you for your continued participation. Shannon

Karen Courtney created a new discussion in Sex and Gender

Hello, The HL7 International May 2025 Ballot (Anatomical Inventories and Person Characteristics) is now open, and in this ... you will find a compressed folder with an Index spreadsheet to allow access to ballot content, either as a PDF (included in the package) or with a link to the HL7 website. Please submit your comments by April 30, 2025. This ballot contains significant information related to anatomical Inventories and your feedback is needed to help ensure that updated HL7 standards enable quality healthcare for all people. If you wish to comment, please follow one of the paths documented below. Step-by-step guides for each path will be available .... 1. Direct Submission - You can directly provide comments by submitting them directly to Infoway via the comment spreadsheet that you will find at InfoCentral. Directly submitting your comments means that the name on your account will be linked to the comment and if the HL7 committee needs clarification or has questions, they could contact you directly. 2. Group Discussions - You can participate in the Sex and Gender Working Group (SGWG) discussion via the SGWG forum at InfoCentral. Comments posted in the forum will be submitted to Infoway as SGWG comments rather than as those of an individual member. If you use this method, you should be aware that it would still be possible for someone to read through the SGWG forum postings to link your comment to your InfoCentral account. Any questions from the HL7 group would come back to the SGWG as a whole for a response rather than to the individual who originally submitted them. 3. Private Email - You can send your comments via email to kdaviso@uvic.ca. Emailed comments will be added into a spreadsheet and attributed to “anonymous.” After being entered into the spreadsheet, the original emails will be deleted. We will not be able to relink you to your comment, and any questions from the HL7 group would be brought to the SGWG as a whole for a response. If you have any questions, please post them to the SGWG forum. Please feel free to share this message with others. Best Regards, Karen

Bashar Kabd joined a group

Sex and Gender Logo
Canadians working together to modernize Canada’s sex and gender information practices in digital health.

Shannon O'Connor created a new discussion in Sex and Gender

Hello everyone, A friendly reminder that our next Sex and Gender Working Group (SGWG) Meeting will be held at 9:00am PT/12:00pm EST on Tuesday, April 22nd. Here is the draft agenda: 1. Welcome and Land Acknowledgement 2. Ground Rules for Respectful Dialogue 3. Purpose of Infoway Sex and Gender Working Group 4. Update: Pan-Canadian Gender, Sex and Sexual Orientation (GSSO) Standards 5. Anatomical Inventories and Person Characteristics: How to Comment on Logical Model 6. Schedule Review 7. Adjournment Please send any agenda requests to Kelly at kdaviso@uvic.ca, Karen at court009@uvic.ca or Shannon at soconnor@cihi.ca. New to the Sex and Gender Working Group? Register here: infoway-inforoute.zoom.us/meeting/register/tZIqf-yoqjIpGtFrqu1R8-9WMY1j8oDWjXZl Guidelines for Respectful Dialogue: - Express disagreement with ideas not personalities - Share airtime - Stay on topic - connect to what others have said - Understand & learn from each other - We are all equal. Leave rank at the door - Listen respectfully especially when you disagree. Acknowledge you have heard the others - Look for common ground - Identify & test assumptions We look forward to seeing you on April 22nd! Have a great day! Shannon O'Connor

Events



Upcoming events:

Tue May 27 @12:00PM - 01:00PM
Sex-Gender Working Group
Tue Jun 24 @12:00PM - 01:00PM
Sex-Gender Working Group
Tue Jul 22 @12:00PM - 01:00PM
Sex-Gender Working Group

Forum

Forward - Community Based Research Centre Survey Available - Sex Now 2025 04/26/25

Forwarding a message about an open survey that may be of interest Hello! I hope this e-mail finds you well. I am sharing the 2025 Sex Now survey with you all. This survey is administered by the Community-Based Research Centre (CBRC), which p...

Online workshop Apr 28 - 30 Pan Canadian Health Information Exchange Standards 04/26/25

Hi The School of Health Information Science at the University of Victoria is hosting a 3 day Virtual Workshop on Health Information Exchange (HIE) standards. The workshop will be held over 3 days from 4pm till 6:30pm Pacific Time on Monday April 2...

SGWG April 22, 2025 Meeting: 9am PT/12pm EST 04/25/25

Hello everyone, The slide decks from this month's meeting are now posted to the Documents folder here: infocentral.infoway-inforoute.ca/en/resources/docs/sex-gender/2025-sessions Have a great weekend! Thank you for your continued participat...

HL7 Ballot - Logical Model Anatomical Inventories & Person Characteristics 04/23/25

Hello, The HL7 International May 2025 Ballot (Anatomical Inventories and Person Characteristics) is now open, and in this ... you will find a compressed folder with an Index spreadsheet to allow access to ballot content, either as a PDF (included...

SGWG April 22, 2025 Meeting: 9am PT/12pm EST 04/13/25

Hello everyone, A friendly reminder that our next Sex and Gender Working Group (SGWG) Meeting will be held at 9:00am PT/12:00pm EST on Tuesday, April 22nd. Here is the draft agenda: 1. Welcome and Land Acknowledgement 2. Ground Rules for...

SGWG March 25, 2025 Meeting at 9a PT/Noon ET 03/29/25

Hi Folks, The slide decks from this month's meeting are now posted to the Documents folder here. infocentral.infoway-inforoute.ca/en/resources/docs/sex-gender/2025-sessions Thank you for your continued participation! Kelly

Invitation to Participate in Knowledge Translation Webinar 03/24/25

We are excited to announce an upcoming 1-hour webinar on Digital Research Infrastructure (DRI) and the Results of the Gender, Sex and Sexual Orientation Digital Health Hub (‘the GSSO Digital Health Hub’) Project, which will take place on March 28, 20...

Open Review webinar - Ontario Mental Health and Addictions Provincial Data Set 03/24/25

Hello, Ontario Health will be hosting an Open Review webinar on March 27, 2025, @ 12:00-1:00pm (EST) to provide details on the Ontario Mental Health and Addictions Provincial Data Set HL7® FHIR® v. 2.0 Interoperability Specification, explain the...

SGWG March 25, 2025 Meeting at 9a PT/Noon ET 03/22/25

I have added the HL7 Anatomical Inventories and Person Characteristics Informative Model ballot to the agenda.

SGWG March 25, 2025 Meeting at 9a PT/Noon ET 03/19/25

***Please Share Widely*** Hello Everyone, A quick reminder about our upcoming meeting at **9:00 AM PT / 12:00 PM ET on March 25, 2025**. We have a very special session planned, featuring a panel discussion on Patient-Controlled Data with two dist...

SGWG February 25, 2025 Meeting at 9a PT/Noon ET 03/19/25

Hi Folks, The slide decks from this month's meeting are now posted to the Documents folder here. infocentral.infoway-inforoute.ca/en/resources/docs/sex-gender/2025-sessions Thank you for your continued participation! Kelly

Invitation to Participate in Developing the GSSO Digital Health Hub 03/03/25

You are invited to participate in a study titled Championing the use of Digital Research Infrastructure amongst nursing researchers in Canada: Sex-Gender Digital Health Equity Research Hub proof of concept and knowledge dissemination to national nurs...

SGWG February 25, 2025 Meeting at 9a PT/Noon ET 02/20/25

Hi Folks, A gentle reminder that our next meeting will be held at 0900 PT/Noon ET on February 25, 2025. Here is the draft agenda: 1. Welcome and Land Acknowledgement 2. Ground rules for respectful dialogue 3. Purpose of Infoway Sex and Gende...

Research Opportunity 02/03/25

Hi - I'm forwarding Morgan's message about a current opportunity for research participation. Please contact Morgan directly with any questions. Thanks! Karen Dear researchers, Beyond the Binary: Gender Diversity in cancer health serv...

SGWG January 28, 2025 Meeting at 9 PT/12 ET 02/01/25

Hi Folks, The slide decks from this month's meeting are not posted to the Documents folder here. https://infocentral.infoway-inforoute.ca/en/resources/docs/sex-gender/2025-sessions Thank you for your continued participation! Kelly

Documents

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Note: Group members are not currently notified when new documents are added. To notify others, you must post the URL to the new document in the forum. (Notification of document uploads is a feature in development.)

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2020 Sessions ( 38 Documents )

2021 Sessions ( 36 Documents )

2022 Sessions ( 30 Documents )

2023 Sessions ( 27 Documents )

2024 Sessions ( 20 Documents )

2025 Sessions ( 14 Documents )

Action Plan ( 4 Documents )

CIHR Planning Project ( 20 Documents )

ISO Documents ( 1 Document )

This folder holds working and in-progress research and documentation which outlines outdated GSSO content that is considered harmful.

MSFHR REACH Project ( 20 Documents )

Publications & Reports ( 3 Documents )

Working Documents ( 6 Documents )

Video

This Group has no videos.

Members

Joanie Harper
Picture of Joanie Harper
Canadian Institue for Health Information
OFFLINE
Contact
Kelly Davison
Picture of Kelly Davison
University of Victoria
OFFLINE
Admin
Karen Courtney
Picture of Karen Courtney
University of Victoria
OFFLINE
Admin
Linda Monico
Picture of Linda Monico
Canada Health Infoway
OFFLINE
Admin
Francis Lau
Picture of Francis Lau
University of Victoria
OFFLINE
Admin
Bashar Kabd
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University of Victoria
OFFLINE
Member
Diana Ridgeway
Picture of Diana Ridgeway
Canadian Institute for Health Information
OFFLINE
Member
Sree Roy
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Health Canada
OFFLINE
Member
Kristie Gordon
Picture of Kristie Gordon
GNB Social Development
OFFLINE
Member
Xavier Hartley
Picture of Xavier Hartley
IWK Health
OFFLINE
Member
Philippe Brown
Picture of Philippe Brown
Hamilton Trans Health Coalition
OFFLINE
Member
Jennifer Lawson
Picture of Jennifer Lawson
Canadian Institute for Health Information
OFFLINE
Member
Jordan Zarvie
Picture of Jordan Zarvie
Nova Scotia Health
OFFLINE
Member
Taylor Hughes
Picture of Taylor Hughes
University of Calgary
OFFLINE
Member
Charlene Lam
Picture of Charlene Lam
BC Ministry of Health
OFFLINE
Member
Members: 147
Contact: Joanie Harper
Type: Open
Access: Public
Canadians working together to modernize Canada’s sex and gender information practices in digital health.

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