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Sex and Gender


Canadians working together to modernize Canada’s sex and gender information practices in digital health.
Members: 101
Type: Open
Access: Public
Canadians working together to modernize Canada’s sex and gender information practices in digital health.

About

Infoway Sex and Gender Working Group

Infoway's Sex-Gender Working Group (SGWG) has been convening since 2019 to modernize gender, sex and sexual orientation (GSSO) information practices in Canada. Meetings are held on the fourth Tuesday of each month at 12 ET / 9 PT for one hour.

The SGWG was established in late 2019 with the support and participation of Canada Health Infoway, CIHI, CHIMA, the University of Victoria and many others. Since then, we have grown to well over 100 registrants who continue this work through regular collaboration, research and discussion.

In early 2021, the SGWG produced "A Proposed Action Plan to Modernize Gender, Sex and Sexual Orientation Practices in Canadian EHRs" which lists seven primary aims, and form the foundation for this ongoing work.

Bring your knowledge and experience to this working group to develop an implementation strategy to modernize sex and gender information practices in EHR systems in Canada.

Additional details:

  • Meeting notes and documentation can be found in the Documents folder.
  • Registration is required for this working group, and registration is valid for all future sessions.
  • A draft agenda will be posted to the group forum about five days in advance of the meeting.
  • Please register for an InfoCentral account and subscribe to receive notifications.

If you are interested or have experience in health terminologies and code systems, feel free to contribute to the GSSO Terminology Workstream (requires registration). For those interested in messaging standards, consider joining the HL7 International Gender Harmony Project.

*Note: Group icon represents different sex and gender identities but is not inclusive.

Activity

Joan Harper created a new discussion in Sex and Gender

We have just scheduled a meeting for Monday October 3rd at 12pm ET. The purpose of this session will be to provide information about the HL7 Ballot, the ballot process, ballot content, and how to comment. We will provide an overview of support materials prepared. This session will NOT be recorded and the names of participants will not be released by Infoway to ensure confidentiality. However, registration will be required and participants who wish to remain anonymous will need to ensure their display name during the session is changed appropriately. Please register for this meeting at: https://infoway-inforoute.zoom.us/meeting/register/tZYqdeyppz8rHNx5hPoTmbfumjI_2gLvj8Tl

Joan Harper replied to a discussion in Sex and Gender

Hi Shannon, Issue with the Gender Identity value set: Rob McClure, after being made aware of the issue, did an update. The update cannot be seen in the ballot however, there is an area called the CI Build, or Continuous Integration Build, where up to the minute changes can be seen. From Rob M. on Zulip We have found that the ballot did not expand the Gender Identity value set due to linking issues with VSAC. In addition that value set is missing a concept for nonbinary gender identity because VSAC has not updated the SNOMED CT code system. We have updated the FHIR core CI build to align with the recommend change so that you all can see the intended value set as it is proposed. That link is http://build.fhir.org/valueset-gender-identity.html. Hopefully this helps. Best Regards, Joanie

Joan Harper replied to a discussion in Sex and Gender

Hi Kelly, I am available on both Oct 3 and Oct 5 for a session. I would be happy to do something together. Joanie

Lindsay MacNeil replied to a discussion in Sex and Gender

Thanks Kelly! I'm available both Oct 3 from 9-11 PT and Oct 5 9-11 PT. Happy to have others join. Lindsay

Shannon O'Connor replied to a discussion in Sex and Gender

Thank you Joan! I will go ahead and create an account for UMLS Terminology Services as you've suggested. In the meantime, if anyone has the value set for Gender Identity and could share it with me, that would be great. I know that the value set is included in the R1 document linked below but I wasn't sure if there had been any changes since it was published. http://www.hl7.org/documentcenter/private/standards/HL7_GENDER_R1_INFORM_2021AUG.pdf I am able to access the code system for Gender Identity but noticed that "other" was included as an option and figure this likely isn't in the value set (but maybe I'm mistaken?) I would love to track down a copy of the value set to confirm. Thanks in advance! Shannon O'Connor Program Consultant, Data Standards Canadian Institute for Health Information

Kelly Davison replied to a discussion in Sex and Gender

Hi Lindsay! Thank you for this question. I think that a very reasonable request would be to hold a meeting next week to go through the process and walkthrough some of the directions/documents together. @joanharper, is this something we could do together? A one-hour session early next week? I am available tomorrow, Monday the 3rd or Wednesday the 5th from 9-11 PT. Alternatively, we could ask for time on the HL7 Canada call on the 4th or I can set up a call with Lindsay. However, I suspect we may have additional interest in an Infoway-led overview session. Let me know what you think. Kelly

Lindsay MacNeil replied to a discussion in Sex and Gender

Hi Kelly! Is there anyone that could have a conversation with me about the areas that need feedback? To be honest, I find the instructions confusing and it is unclear to me how all the different elements are intended to work together in practice. Is there a summary document that outlines this? Thanks! Lindsay

Events



Upcoming events:

Tue Oct 25 @12:00PM - 01:00PM
Sex-Gender Working Group
Tue Nov 22 @12:00PM - 01:00PM
Sex-Gender Working Group

Forum

HL7 Gender Harmony Ballot Information Session 09/29/22

We have just scheduled a meeting for Monday October 3rd at 12pm ET. The purpose of this session will be to provide information about the HL7 Ballot, the ballot process, ballot content, and how to comment. We will provide an overview of support mat...

Discussion Thread for HL7 Cross Paradigm Implementation Guide 09/29/22

Hi Shannon, Issue with the Gender Identity value set: Rob McClure, after being made aware of the issue, did an update. The update cannot be seen in the ballot however, there is an area called the CI Build, or Continuous Integration Build, where...

Discussion Thread for HL7 Cross Paradigm Implementation Guide 09/28/22

Hi Kelly, I am available on both Oct 3 and Oct 5 for a session. I would be happy to do something together. Joanie

Discussion Thread for HL7 Cross Paradigm Implementation Guide 09/28/22

Thanks Kelly! I'm available both Oct 3 from 9-11 PT and Oct 5 9-11 PT. Happy to have others join. Lindsay

Discussion Thread for HL7 Cross Paradigm Implementation Guide 09/27/22

Thank you Joan! I will go ahead and create an account for UMLS Terminology Services as you've suggested. In the meantime, if anyone has the value set for Gender Identity and could share it with me, that would be great. I know that the value set is in...

Discussion Thread for HL7 Cross Paradigm Implementation Guide 09/27/22

Hi Lindsay! Thank you for this question. I think that a very reasonable request would be to hold a meeting next week to go through the process and walkthrough some of the directions/documents together. @joanharper, is this something we could do to...

Discussion Thread for HL7 Cross Paradigm Implementation Guide 09/27/22

Hi Kelly! Is there anyone that could have a conversation with me about the areas that need feedback? To be honest, I find the instructions confusing and it is unclear to me how all the different elements are intended to work together in practice. Is...

Discussion Thread for HL7 Cross Paradigm Implementation Guide 09/27/22

Hi Shannon, The only way that I can see is by creating an account for the UMLS Terminology Services that is part of the NIH National Library of Medicine. Once you sign up, NLM will contact you within 3 business days with more information on how...

Discussion Thread for HL7 Cross Paradigm Implementation Guide 09/27/22

Thanks Joan! Will do. In the meantime, is there somewhere that I can access the value set for Gender Identity? Thank you! Shannon O'Connor Program Consultant, Data Standards Canadian Institute for Health Information

Discussion Thread for HL7 Cross Paradigm Implementation Guide 09/27/22

Hi Shannon, This issue should be entered as a comment on the spreadsheet for the FHIR ballot so that the authors can address it as part of their ballot reconciliation. Best Regards, Joanie

Discussion Thread for HL7 Cross Paradigm Implementation Guide 09/27/22

Thanks Joan and Kelly! I can't seem to access the value set for gender identity at the link that Joan has provided to the FHIR specification below. Under Section 4.4.1.478.2 Expansion, it states that the value set could not be expanded by the publica...

Discussion Thread for HL7 Cross Paradigm Implementation Guide 09/26/22

Hi Shannon, Those terminologies are being balloted as part of the Out-of-Cycle ballot that is currently underway however, those terminologies are part of the FHIR R5 specification. The links to each terminology page are: - Gender Identitiy...

Discussion Thread for HL7 Cross Paradigm Implementation Guide 09/26/22

Hi Shannon. Thank you for your question. Yes, the content in the R1 document were balloted in 2021. However, since they are included as an appendix, please add any comments you have to your ballot comment document (or this thread), along with referen...

Discussion Thread for HL7 Cross Paradigm Implementation Guide 09/26/22

Hi there, I was wondering if anyone could tell me whether the value sets for Recorded Sex or Gender, Gender Identity, Sex for Clinical Use and Pronouns (from Appendix 1 of the document below) have already been balloted? http://www.hl7.org/docum...

Discussion Thread for HL7 Cross Paradigm Implementation Guide 09/20/22

Hello, This is a discussion thread for the HL7 Cross Paradigm Implementation Guide: Sex and Gender Representation, Release 1 ballot document. -- This provides use cases and examples, informative text describing the Gender Harmony changes for...

Documents

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2020 Sessions ( 38 Documents )

2021 Sessions ( 36 Documents )

2022 Sessions ( 24 Documents )

Action Plan ( 4 Documents )

CIHR Planning Project ( 20 Documents )

ISO Documents ( 0 Document )

This folder holds working and in-progress research and documentation which outlines outdated GSSO content that is considered harmful.

MSFHR REACH Project ( 20 Documents )

Publications & Reports ( 3 Documents )

Working Documents ( 6 Documents )

Sex and Gender + balloting process

Published on Aug 02, 2022 by Joan Harper

Video

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Members

Andrea MacLean
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Canada Health Infoway
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Kelly Davison
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University of Victoria
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Karen Courtney
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University of Victoria
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Linda Monico
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Canada Health Infoway
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Francis Lau
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University of Victoria
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Katherine Whitelock
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n/a
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Anne Forsyth
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CIHI
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Ron Parker
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Parker Digital Health Consulting Inc.
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Kareen Mowatt-Degouth
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Shannon O'Connor
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Canadian Institute for Health Information
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Mina Karmali
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AHS
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Janine Kaye
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Canadian Institute for Health Information
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Maureen Kelly
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Canadian Institute for Health Information
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Alyssa Bryan
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Canadian Institute for Health Information
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K C
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