The InfoCentral migration to Accelerō has been paused while we finalize the next steps. Learn More >

Share this page:

Sex and Gender


Canadians working together to modernize Canada’s sex and gender information practices in digital health.
Members: 161
Type: Open
Access: Public
Canadians working together to modernize Canada’s sex and gender information practices in digital health.

About

Infoway Sex and Gender Working Group

Infoway’s Sex and Gender Working Group (SGWG) has been convening since 2019 to advance the modernization of gender, sex, and sexual orientation (GSSO) information practices across Canada’s digital health ecosystem. Meetings are held on the fourth Tuesday of each month for one hour, from 12:00 ET / 9:00 PT.

The SGWG was established with the support and participation of Canada Health Infoway, the Canadian Institute for Health Information (CIHI), the Canadian Health Information Management Association (CHIMA), the University of Victoria, and multiple Canadian jurisdictions, including Nova Scotia, British Columbia, Ontario, and others. The group has since grown to more than 100 registered participants, who contribute through ongoing collaboration, research exchange, standards alignment, and implementation-focused discussion.

In early 2021, the SGWG released A Proposed Action Plan to Modernize Gender, Sex and Sexual Orientation Practices in Canadian EHRs. This Action Plan articulates seven core aims that continue to guide the group’s work, including equity-oriented data practices, culturally safe and gender-affirming care, interoperability, education, and system accountability.

The SGWG provides a national forum to:

  • Examine and advance inclusive, respectful, and clinically meaningful GSSO data practices

  • Support implementation of pan-Canadian and jurisdictional standards in EHR systems

  • Address structural inequities, including Indigenous-specific racism and discrimination against gender-diverse, Two-Spirit, trans, and non-binary people in healthcare

  • Share emerging research, implementation lessons, and policy-relevant insights

Participants are invited to bring their expertise and lived or living experience to help shape practical, implementation-ready strategies for modernizing sex and gender information practices in Canada.

Additional Details

  • Meeting notes and related materials are available in the group’s Documents folder.

  • Registration is required and remains valid for all future sessions.

  • A draft agenda is typically posted to the group forum approximately five days prior to each meeting.

  • Participants are encouraged to register for an InfoCentral account and subscribe to receive forum notifications and updates on SGWG activities.

Note: The current group icon represents diversity in sex and gender but is not fully inclusive; this is acknowledged as an area for future improvement.

    Activity

    Kelly Davison replied to a discussion in Sex and Gender

    My error. The meeting is on the 26th.

    Kelly Davison created a new discussion in Sex and Gender

    On May 26th, the SGWG is pleased to welcome Nadia Bouhamdani, PhD, an author, and researcher of the 2025 Pink Paper on Health from Pink Triangle Press, 2SLGBTQIA+ Health Disparities in Canada. The report presents findings from a national, bilingual, comparative study of health and healthcare experiences among 2SLGBTQIA+ people in Canada. Dr. Bouhamdani is a Clinical Specialist with the Provincial Medical Genetics Program at the Dr. Georges-L.-Dumont University Hospital Centre and has academic and research affiliations with Vitalité Health Network, Université de Sherbrooke. This work is highly relevant to the SGWG as it highlights health inequities, barriers to care, and experiences of discrimination. From a system design perspective, these findings point to the need for more inclusive and affirming health information practices for 2SLGBTQIA+ people. This evidence advances the national conversation on how GSSO information practices can safeguard dignity, strengthen trust, reduce harms such as misgendering and deadnaming, and support safer, more equitable, and standards-aligned care across Canadian health systems. For more information about the group, and to register, visit our About page. https://infocentral.infoway-inforoute.ca/en/collaboration/wg/sex-gender

    Paul Dolinar joined a group

    Sex and Gender Logo
    Canadians working together to modernize Canada’s sex and gender information practices in digital health.

    Kelly Davison replied to a discussion in Sex and Gender

    Good morning folks, The materials from our April meeting have been posted to the SGWG Documents folder at the link below. infocentral.infoway-inforoute.ca/en/resources/docs/sex-gender/2026-sessions-sex-gender Have a good day, Kelly

    Allison Anderson joined a group

    Sex and Gender Logo
    Canadians working together to modernize Canada’s sex and gender information practices in digital health.
    Sex and Gender Logo
    Canadians working together to modernize Canada’s sex and gender information practices in digital health.

    Kelly Davison created a new discussion in Sex and Gender

    Hello everyone, This is a friendly reminder that the next Sex and Gender Working Group (SGWG) meeting will be held on: Tuesday, April 28, 2026 9:00–10:00 am PT / 12:00–1:00 pm ET This month, we’re pleased to welcome Karen Luyendyk as co-chair of the SGWG, alongside Shannon O’Connor and Kelly Davison, and begin shifting more intentionally toward implementation-focused discussions. Karen is a retired nurse and long-time advocate who remains actively engaged in systems change and improvement. We’re very glad to have her join in a co-leadership role. Draft Agenda 1. Welcome and Territorial Acknowledgement 2. Introductions and Co-Chair Welcome (Karen Luyendyk) 3. Ground Rules for Respectful Dialogue 4. Infoway Web Resources – Accelero 5. Implementation in Practice – Group Discussion 6. GSSO Digital Health Hub 7. Schedule Review 8. Adjournment This month, we won’t have a guest speaker. Instead, we’ll use this time to learn from one another and begin grounding our work in real-world implementation. We invite you to share: a. What you are currently doing to improve the capture and use of sex and gender data b. What you are planning or hoping to implement c. What you have already implemented and learned from We’re particularly interested in: a. Barriers and challenges encountered b. Strategies that helped move work forward c. Successes and promising practices This is an opportunity to connect across contexts, surface shared challenges, and build momentum as a community of practice. Meeting Details The session will be co-facilitated by the SGWG co-chairs. If you have agenda items or suggestions, please send them to: Kelly Davison ([email protected] ) Shannon O’Connor ([email protected] ) New to the Sex and Gender Working Group? You’re very welcome to join. Please register here: infoway-inforoute.zoom.us/meeting/register/tZIqf-yoqjIpGtFrqu1R8-9WMY1j8oDWjXZl Guidelines for Respectful Dialogue 1. Express disagreement with ideas, not people 2. Share airtime 3. Stay on topic and build on what others have said 4. Listen to understand, especially when you disagree 5. Acknowledge what you’ve heard 6. Leave rank at the door—we are all equal here 7. Look for common ground 8. Identify and test assumptions As always, we’re grateful for the care, expertise, and generosity you bring to this space. Warm regards, Karen Luyendyk, Shannon O’Connor & Kelly Davison SGWG Co-Chairs

    Events



    Upcoming events:

    Tue May 26 @12:00PM - 01:00PM
    Sex-Gender Working Group
    Tue Jun 23 @12:00PM - 01:00PM
    Sex-Gender Working Group
    Tue Jul 28 @12:00PM - 01:00PM
    Sex-Gender Working Group

    Forum

    SGWG May 26, 2026 Meeting: 9am PT / 12pm EST 05/14/26

    My error. The meeting is on the 26th.

    SGWG May 26, 2026 Meeting: 9am PT / 12pm EST 05/14/26

    On May 26th, the SGWG is pleased to welcome Nadia Bouhamdani, PhD, an author, and researcher of the 2025 Pink Paper on Health from Pink Triangle Press, 2SLGBTQIA+ Health Disparities in Canada. The report presents findings from a national, bilingual,...

    SGWG April 28, 2026 Meeting: 9am PT / 12pm EST 05/07/26

    Good morning folks, The materials from our April meeting have been posted to the SGWG Documents folder at the link below. infocentral.infoway-inforoute.ca/en/resources/docs/sex-gender/2026-sessions-sex-gender Have a good day, Kelly

    SGWG April 28, 2026 Meeting: 9am PT / 12pm EST 04/23/26

    Hello everyone, This is a friendly reminder that the next Sex and Gender Working Group (SGWG) meeting will be held on: Tuesday, April 28, 2026 9:00–10:00 am PT / 12:00–1:00 pm ET This month, we’re pleased to welcome Karen Luyendyk as co-cha...

    Open Review Webinar: Medical Imaging IG v1.0.0-ballot and DICOM IG v1.0.0-ballot 04/14/26

    Good morning, Ontario Health will be hosting an Open Review webinar on Thursday April 23, 2026, @ 12:00-1:30pm (EST) to provide details on the Ontario Medical Imaging HL7® FHIR® Implementation Guide v1.0.0-ballot and Ontario Medical Imaging DICOM...

    SGWG March 24, 2026 Meeting: 9am PT / 12pm EST 03/25/26

    Good morning folks, The presentation from yesterday's meeting have been posted to the SGWG Documents folder at the link below. https://infocentral.infoway-inforoute.ca/en/resources/docs/sex-gender/2026-sessions-sex-gender CIHI's Draft GSSO Q...

    SGWG March 24, 2026 Meeting: 9am PT / 12pm EST 03/20/26

    Hello everyone, This is a friendly reminder that the next Sex and Gender Working Group (SGWG) meeting will be held on: Tuesday, March 24, 2026 9:00–10:00 am PT / 12:00–1:00 pm ET Draft agenda: 1. Welcome and Territorial Acknowledgement...

    Open Review Webinar: Integrated Assessment Record HL7® FHIR® IG v1.0.0 ballot 03/17/26

    Ontario Health will be hosting an Open Review webinar on March 26, 2026, at 12:00-1:00 pm (EST) to provide details on the Ontario Integrated Assessment Record (IAR) HL7® FHIR® Implementation Guide v1.0.0-ballot, explain the process of providing coord...

    REDEFINE Study Findings Webinar 02/27/26

    Greetings folks, an opportunity to view the findings from the REDFINE Study shared by Dr. Aaron Devor. Details below: --- Come check out the findings from the REDEFINE Study! Mark your calendars for Wednesday, March 18th at 12pm. At REDEFINE, w...

    SGWG February 24, 2026 Meeting: 9am PT / 12pm EST 02/25/26

    Good morning, Documents from this week's meeting can be found in the 2026 documents folder. infocentral.infoway-inforoute.ca/en/resources/docs/sex-gender/2026-sessions-sex-gender Thanks you for your continued dedication, Kelly

    SGWG February 24, 2026 Meeting: 9am PT / 12pm EST 02/19/26

    Hello everyone, This is a friendly reminder that the next Sex and Gender Working Group (SGWG) meeting will be held on: Tuesday, February 24, 2026 9:00–10:00 am PT / 12:00–1:00 pm ET We are thrilled to have Devon MacFarlane join us to discu...

    SGWG January 27, 2026 Meeting: 9am PT/12pm ET 01/30/26

    Good morning, Documents from this week's meeting can be found in the 2026 documents folder. https://infocentral.infoway-inforoute.ca/en/resources/docs/sex-gender/2026-sessions-sex-gender Thanks for all your work, Kelly

    Open Review Webinar: Ontario Clinical Report Exchange (OCRE) HL7® FHIR® 01/22/26

    Hello, Ontario Health will be hosting an Open Review webinar on Thursday January 29, 2026, @ 12:00-1:00pm (EST) to provide details on the Ontario Clinical Report Exchange (OCRE) HL7® FHIR® Implementation Guide v1.0.0 -ballot, explain the process o...

    SGWG January 27, 2026 Meeting: 9am PT/12pm ET 01/22/26

    Hi everyone, Happy New Year, and welcome back! We’re looking forward to starting 2026 together and continuing our shared work on equity-oriented modernization of sex and gender information in digital health. This is a friendly reminder that the ne...

    SGWG November 25, 2025 Meeting: 9am PT/12pm EST 11/20/25

    Hi everyone, A friendly reminder that our next Sex and Gender Working Group (SGWG) Meeting will be held at 9:00am PT/12:00pm EST on Tuesday, November 25th. Here is the draft agenda: 1. Welcome and Territorial Acknowledgement 2. Ground Rules...

    Documents

    Click Manage documents to:

    • view the complete list of documents or documents grouped by folder
    • upload a new document

    Note: Group members are not currently notified when new documents are added. To notify others, you must post the URL to the new document in the forum. (Notification of document uploads is a feature in development.)

    Manage documents You may need to login and/or be a member of the group to access this content.

    2020 Sessions ( 38 Documents )

    2021 Sessions ( 36 Documents )

    2022 Sessions ( 30 Documents )

    2023 Sessions ( 27 Documents )

    2024 Sessions ( 20 Documents )

    2025 Sessions ( 30 Documents )

    2026 Sessions ( 11 Documents )

    Action Plan ( 4 Documents )

    CIHR Planning Project ( 20 Documents )

    ISO Documents ( 0 Document )

    This folder holds working and in-progress research and documentation which outlines outdated GSSO content that is considered harmful.

    MSFHR REACH Project ( 20 Documents )

    Publications & Reports ( 3 Documents )

    Working Documents ( 6 Documents )

    Video

    This Group has no videos.

    Members

    Krista Balenko
    Picture of Krista Balenko
    Canada Health Infoway
    OFFLINE
    Contact
    Shannon O'Connor
    Picture of Shannon O'Connor
    Canadian Institute for Health Information
    OFFLINE
    Admin
    Kelly Davison
    Picture of Kelly Davison
    University of Victoria
    OFFLINE
    Admin
    Paul Dolinar
    Picture of Paul Dolinar
    North York General Hospital
    OFFLINE
    Member
    Allison Anderson
    Picture of Allison Anderson
    MEDITECH
    OFFLINE
    Member
    Lyn Baluyot, TransForm Baluyot
    Picture of Lyn Baluyot, TransForm Baluyot
    Lyn Baluyot
    OFFLINE
    Member
    Roberta Cardiff
    Picture of Roberta Cardiff
    Ontario Health
    OFFLINE
    Member
    Jessica Healy-Profitós
    Picture of Jessica Healy-Profitós
    Centre de recherche du CHUM
    OFFLINE
    Member
    Lori Newman
    Picture of Lori Newman
    Public Health Ontario
    OFFLINE
    Member
    Megan Brydon
    Picture of Megan Brydon
    Government of Nova Scotia
    OFFLINE
    Member
    Clara Tardif
    Picture of Clara Tardif
    Université de Montréal
    OFFLINE
    Member
    Natalie Cardinal
    Picture of Natalie Cardinal
    Cornwall Community Hospital
    OFFLINE
    Member
    Jessica MacDougall
    Picture of Jessica MacDougall
    NS Department of Health
    OFFLINE
    Member
    Shangjucta Das Pooja
    Picture of Shangjucta Das Pooja
    Canadian Institute for Health Information
    OFFLINE
    Member
    Sonja Vergeer
    Picture of Sonja Vergeer
    N/A
    OFFLINE
    Member

    InfoCentral logo

    Improving the quality of patient care through the effective sharing of clinical information among health care organizations, clinicians and their patients.