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Patient Summaries

Collaborate on the various aspects of creating, distributing and consuming a health records summary for a patient.

Membres: 287

Personne-ressource: Allana Cameron

Administration: Sonia Balgah, Sadrina Petit, Sangita Nadarajah, Samantha Zaffino, Attila Farkas

Type: Ouvert

Accès: Public

Collaborate on the various aspects of creating, distributing and consuming a health records summary for a patient.

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À propos de nous

Welcome to the Patient Summary Working Group

The purpose of this working group is to collaborate on the various aspects of creating, distributing and consuming a health records summary for a patient.

Part of this work will include a definition of what a meaningful health summary should be in the Canadian context, what elements it should include, the standards to be used in its definition and the technical interoperability considerations to support its life cycle.

There are a number of international initiatives that deal with summaries (e.g. IPS). This working group will analyze alignment of those specifications to the expected clinical scenarios that are expected in the Canadian context.

The pan-Canadian interoperability specificaitons and information about testing events (i.e., the Projectathon) can be found on InfoScribe. Notifications about upcoming events will be served through the Forums in this working group.

Welcome once again, please check out the group calendar for upcoming events and the Forum feeds for ongoing conversations.

Activité

James Jahns s'est joint(e) à un groupe

Patient Summaries

Collaborate on the various aspects of creating, distributing and consuming a health records summary for a patient.

Lisa Engel s'est joint(e) à un groupe

Patient Summaries

Collaborate on the various aspects of creating, distributing and consuming a health records summary for a patient.

Sandra Ketler a répondu au cours d'une discussion dans le groupe Patient Summaries

Information for patient summary

Thank you Allana. Sadly I have to miss tomorrow for a medical appointment. I wonder if “what matters to you” could be added as a prompt in the “Patient Story”? Interested in what everyone thinks! Sandy

Allana Cameron a répondu au cours d'une discussion dans le groupe Patient Summaries

Information for patient summary

Hello everyone, Thank you, Sandy and Tracey, for your valuable insights. The timing of your feedback is perfect, and we will certainly discuss it! The International Patient Summary (IPS) will introduce two new sections later this spring/early summer that offer promising ways to prioritize critical safety information. I’d love to hear your thoughts, and the thoughts of our other Patient Summary stakeholders, on how the following sections could address the concerns raised: 1) Alerts: This section brings the most important healthcare information to the forefront, highlighting extreme problems or potential dangers. Previously, ‘alerts’ were reported as ‘problems,’ risking the loss of immediacy and importance. The new Alerts section will explicitly flag potential dangers to or from the patient or obstacles to care. 2) Patient Story: This section allows patients to communicate what matters most to them, directly or through a proxy. It captures personal priorities or critical information that the attending clinician should know. In our working group, we’ll discuss the timing for incorporating these sections into the pan-Canadian Patient Summary (Canada’s adaptation of the IPS). Collaboration is key to making the patient summary a safer and more comprehensive tool. Thanks again for your thoughtful feedback! Allana

Sandra Ketler a répondu au cours d'une discussion dans le groupe Patient Summaries

Information for patient summary

Thank you Tracey for your wise and supportive reply. Sandy

Tracey Alderson a répondu au cours d'une discussion dans le groupe Patient Summaries

Information for patient summary

Thank you, Sandra, for your valuable input! As a registered nurse, I completely agree with your recommendation. Here in Manitoba we have a patient summary called the Home Clinic Client Summary, which is generated from data entered in certain fields of a primary care clinic's electronic medical record (EMR). The summary is sent to our province-wide electronic health record, which is a repository of a variety of clinical information, called eChart. The summary is sent without review by the provider (with a disclaimer of same noted on the summary) in order to expedite the information being sent. Our provider advisory group decided it would be a burden to require the submitting providers to review every single one, hence the disclaimer. We are still trying to get providers to include more robust information. For example, we have an Allergies section, but only a small percentage of summaries contain any information thus far. We also have a Home Clinic Comments section at the very top of the summary; however, again, this section is rarely used, but it was intended for the very thing you mentioned - "do not prescribe ," or any other critical information the provider deems important. I hope, as you do, that this patient safety information is incorporated in some way. Regards, Tracey Alderson RN BN MSN Clinical Informaticist, EHR Services Shared Health MB/Digital Shared Services

Sandra Ketler a lancé une nouvelle discussion dans le groupe Patient Summaries

Information for patient summary

Hello to all I am super new to this group, so I am here without your experience. I do have an ask for your consideration and if you agree, your support. I am concerned about the allergy section of a summary not being sufficient to ensure patient safety. I feel “do not prescribe” information is also very important to capture and include in the Patient Summary. There are many with health conditions - Down Syndrome, Parkinson’s Disease to name two - who will experience permanent functional harm if prescribed certain classes of medications. Those who have recovered from addiction to opioids would benefit from not being prescribed them again, or being prescribed them with great care. I do not tolerate anti inflammatory medications as I experienced kidney injury which took years to recover from. These are not allergies and I feel for patient safety the Patient Summary would be more complete with the addition of a “do not prescribe” section. I don’t believe this is “on the radar” for the patient summary, but hope it is not to late to be considered. Thank you. Sandy Ketler Person with lived experience Patient Advisor Wife, Mother, sister, friend Kelowna BC

Événements à venir :

Ven Mar 21 @ 1:00PM - 02:00PM
Patient Summary Working Group Meeting

Mar Mar 25 @ 1:00PM - 02:00PM
Patient Summary Working Group Meeting

Ven Mar 28 @12:00PM - 01:00PM
Patient Summary Working Group Meeting

Forum

Sandra Ketler

Déconnecté(e)

Information for patient summary 03/18/25

Allana Cameron

Déconnecté(e)

Information for patient summary 03/17/25

Sandra Ketler

Déconnecté(e)

Information for patient summary 03/14/25

Thank you Tracey for your wise and supportive reply. Sandy

Tracey Alderson

Déconnecté(e)

Information for patient summary 03/14/25

Sandra Ketler

Déconnecté(e)

Information for patient summary 03/14/25

Sonia Balgah

Déconnecté(e)

PS-CA Backlog Disposition Sessions – Feedback from Previous Ballot Cycles 03/14/25

Hi PSWG, We have scheduled a series of meetings over the next two weeks to review and resolve PS-CA backlog items from previous ballot cycles. This is in preparation for the upcoming PS-CA version 2.1.0 DFT-Ballot release and Ballot Cycle. Our fir...

Sonia Balgah

Déconnecté(e)

Notice of Intent to ballot: PS-CA v2.1.0 DFT 03/12/25

Hello PSWG, We are pleased to provide this notice of intent to ballot the PS-CA v2.1.0 DFT. The key dates for the ballot cycle are as follows: • Ballot release available for review: April 11, 2025 • Ballot review and feedback submission: April...

Sonia Balgah

Déconnecté(e)

Notice of Intent to ballot: PS-CA v2.1.0 DFT 03/12/25

Sonia Balgah

Déconnecté(e)

Reminder: PSWG Meeting – CA:FeX Education Session (March 11, 1:00–2:00 PM EDT) 03/10/25

Hi PSWG, Just a quick reminder that our next PSWG meeting is coming up on March 11 from 1:00 to 2:00 PM EDT ! We’ll have a brief discussion about Ballot cycle timelines and do a Projectathon/Plugathon recap. The main focus will be a CA:FeX educ...

Sadrina Petit

Connecté(e)

Experience Days and Plugathon Presentations Now Available 02/27/25

Hi everyone, The presentations from Experience Days and the Plugathon have been uploaded and are now available for download! You can find all materials in a single zip file, organized into folders by event and day for easy navigation. Download...

Sonia Balgah

Déconnecté(e)

PSWG Meeting – CA:FeX Education Session (March 11, 1–2 PM EDT) 02/24/25

Hello PSWG, Our next PSWG meeting is scheduled for March 11 from 1:00 to 2:00 PM EDT. During the IHE North America Connectathon week, we offered a couple of education sessions on the pan-Canadian FHIR Exchange specification (CA:FeX). We know that...

Sadrina Petit

Connecté(e)

Take 5 Minutes to Complete the IHE North America Connectathon Survey! 02/13/25

Hello everyone, Thank you for attending the IHE North America Connectathon! Your feedback is essential in shaping the future of healthcare interoperability. ... By sharing your insights, you will directly contribute to: ✅ Ensuring that ou...

Ken Sinn

Déconnecté(e)

PS-CA 2.0.3 DFT-Ballot Hotfix FHIR Package Release 02/03/25

Hi all, We have made a few hotfixes to the PS-CA FHIR Package, which currently is at ... . The key changes since version 2.0.0 DFT-Ballot: Patient.identifier slicing has changed from fixedCodeableConcept to patternCodeableConcept The Va...

Sadrina Petit

Connecté(e)

Connectathon Week Welcome Package 01/31/25

Dear Participants, We would like to take this opportunity to thank you for your interest and commitment to participating in the first Canadian hosted, Connectathon Week. The response has been tremendous with all four events completely sold out!...

Allana Cameron

Déconnecté(e)

Exciting IPS Discussions Await at the Plugathon – Check Out the Full Schedule! 01/15/25

Join us at the Plugathon for an exciting 2.5-day event highlighting the International Patient Summary (IPS)! The pan-Canadian Patient Summary, as an adaptation of the IPS, will be highlighted in the IPS Track. Track 2: IPS & Patient-Mediated Acces...

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