SGWG March 25, 2025 Meeting at 9a PT/Noon ET

Hi Folks,
The slide decks from this month's meeting are now posted to the Documents folder here.
infocentral.infoway-inforoute.ca/en/resources/docs/sex-gender/2025-sessions

Thank you for your continued participation!

Kelly

I have added the HL7 Anatomical Inventories and Person Characteristics Informative Model ballot to the agenda.

***Please Share Widely***

Hello Everyone,
A quick reminder about our upcoming meeting at **9:00 AM PT / 12:00 PM ET on March 25, 2025**. We have a very special session planned, featuring a panel discussion on Patient-Controlled Data with two distinguished guests:

L Weaver, Postdoctoral Fellow at the University of Utah and Adela Grando, PhD, FACMI, FAMIA, Associate Professor of Biomedical Informatics at Arizona State University

About Our Panelists
L Weaver is a first-year Postdoctoral Fellow at the University of Utah. Their prior research focused on medical records and health data for underserved populations, documenting unique data practices and EHR interventions to improve provider interactions. This involved interviews with healthcare providers, researchers, software developers, and patients on friction points, marginalia, social histories, work-arounds, and proposed solutions. Currently, L applies large data approaches—using machine learning and natural language processing—to uncover disparities in care for marginalized populations, exploring how patient-provider interactions affect outcomes and the health records generated by providers..

Dr. Adela Grando is an Associate Professor of Biomedical Informatics and Director of Research Education at Arizona State University’s College of Health Solutions, as well as an Adjunct Assistant Professor at Mayo Clinic. Trained in the US, Europe, and Latin America (including UC San Diego, Oxford, and Edinburgh), her expertise lies in consumer health informatics. Dr. Grando applies computer science to medicine, developing technologies that empower patients’ healthcare decisions—particularly those often excluded from research, such as Latinx communities and individuals with behavioral health conditions.

Panel Background
In recent years, health and government information systems have made gender variance more visible in records. However, being “counted” can create new vulnerabilities for transgender and gender-diverse communities. This discussion will provide evidence for the need to adapt recordkeeping structures to safeguard against hostile uses, systemic bias, and structural violence. The panel will close with a call to engage healthcare standards in supporting patient-controlled record review and sharing.

Draft Agenda
1. Welcome and Land Acknowledgement
2. Ground Rules for Respectful Dialogue
3. Purpose of Infoway Sex and Gender Working Group
4. Panel Discussion: Patient-Controlled Data
5. GSSO Digital Health Hub
6. Schedule Review
7. Adjournment

Please send any agenda requests to Kelly This email address is being protected from spambots. You need JavaScript enabled to view it., Karen This email address is being protected from spambots. You need JavaScript enabled to view it., or Shannon This email address is being protected from spambots. You need JavaScript enabled to view it..

New to the Sex and Gender Working Group?
Register here:
infoway-inforoute.zoom.us/meeting/register/tZIqf-yoqjIpGtFrqu1R8-9WMY1j8oDWjXZl

Guidelines for Respectful Dialogue
- Focus on ideas, not personalities
- Share airtime
- Stay on topic—connect with what others have said
- Understand and learn from one another
- We are all equal—leave rank at the door
- Listen respectfully, especially if you disagree. Acknowledge others’ perspectives
- Look for common ground
- Identify and test assumptions

We look forward to seeing you on March 25!

Thank you,
Kelly