Infoway Sex-Gender Working Group meeting on Apr 14, 2020 at 9am PT / 12pm ET

April 14, 2020 Sex and Gender Working Group Agenda and Meeting Notes are now posted to the documents folder, link here:
infocentral.infoway-inforoute.ca/en/resources/docs/sex-gender/sex-gender-meetings

They can also be found below:

1. Welcome

2. Presentation – University of Victoria: Professor Francis Lau: Environmental Scan of Sex and Gender Definitions in Electronic Health Record (HER) Systems

Dr. Lau provided an overview of the draft paper, along with the preliminary results and invited feedback and comments. Content included and explanation/working definition of terms, purpose, methods, initial results including summaries of sex and gender definitions in Canadian EHR systems, expanded definitions and a summary of related standards. Preliminary findings were discussed and have important implications for the Canadian heath care systems and for standards in general. Key action items, including reaching consensus and developing a coordinated action plan, were outlined.

3. Presentation – University of Victoria: Marcy Antonio PhD(c): Rapid Review of Sex and Gender Information Practices in Electronic Health Records

Marcy Antonio provided information about the rapid review protocol, some key preliminary findings, and discussed an exemplar paper. This presentation outlined some of the uses of information (practices) in EHRs, with a focus on key areas such policy, practice, research, community and implementation with an eye to developing an implementation strategy for modernized information practices that support equity and facilitate successful implementation by addressing gaps and challenges.

4. Discussion

Rigorous discussion regarding the importance of equity, challenges with privacy, ownership, and ensuring that legacy data remain intact, as well as current practice in AB (the use of an organ inventory) followed, as well as some question as to who the target audience for the publication ought to be. Additional questions implicate the broader treatment of sex and gender concepts in federal and provincial systems like RCMP, Corrections, First Nations data and National Defense, need to quantify current health inequities and identify current implementation challenges in the literature and strategies for addressing them. Critical considerations around patient and individual privacy and confidentiality, and patient rights, were raised. Bigotry and stigma will need to be addressed, and practices will need to be developed around information management and self-identification.

Francis can be contacted with regard to the environmental scan.

Marcy has taken the feedback and will be incorporating it into the rapid review.

5. Other Business

Gender Harmony Project information. First CIHR Stakeholder Consultation Meeting April 28, 2020 at 12 ET / 9 PT. Reminder will be posted.

6. Adjournment

Folks, thank you for the wonderful discussion today.

Meeting notes and details for the next meeting will be posted by the end of the week. PDFs of Dr. Lau and Marcy Antonio's presentations are now posted to the documents folder. Here is the link: infocentral.infoway-inforoute.ca/en/resources/docs/sex-gender/sex-gender-presentations

Please email Professor Francis Lau if you would like a copy of the draft environmental scan to review or to provide comments on. And please stay tuned to this forum for additional posts regarding the April 28th CIHR Consultation Session and for further details regarding future Sex and Gender Working Group meetings. Next planned meeting is May 12th, 2020 at Noon ET/ 9 PT.

And in case you missed it, the folks at HL7 are engaged in complimentary work via the Gender Harmony Project: confluence.hl7.org/display/VOC/The+Gender+Harmony+Project

Good morning folks,

A gentle reminder of today's Sex and Gender Working Group meeting, hosted by Canada Health Infoway. Details are below. Please note that Zoom meeting settings have been changed in order maximize security for this meeting, though it remains a public meeting (not password protected) and meeting details remain exposed on the public forum. I would kindly ask that all regular and interested participants send me their email address at This email address is being protected from spambots. You need JavaScript enabled to view it.. In the unfortunate event that the meeting is attacked and needs to be shut down, I will be able to follow up directly.

Draft Agenda:

1. Welcome
2. Environmental Scan and Rapid Review
3. Group Discussion
4. Other Items
4. Adjournment

Folks, welcome to the Sex and Gender Working Group meetings hosted by Canada Health Infoway. Please see below for details.
Topic: Sex and Gender WG Meeting
Time: Second Tuesday of each month at Noon ET/ 9 PT (US and Canada)

Join Zoom Meeting
infoway-inforoute.zoom.us/j/555765225

Meeting ID: 555 765 225
One tap mobile
8557038985,,555765225# Canada Toll-free

Dial by your location
855 703 8985 Canada Toll-free
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Meeting ID: 555 765 225
Find your local number: infoway-inforoute.zoom.us/u/aQ9yk7Jhl

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Join by H.323
162.255.37.11 (US West)
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213.19.144.110 (EMEA)
103.122.166.55 (Australia)
209.9.211.110 (Hong Kong)
64.211.144.160 (Brazil)
69.174.57.160 (Canada)
207.226.132.110 (Japan)
Meeting ID: 555 765 225

Contact: Kelly Davison

Good morning folks. Please join us for Infoway's next Sex and Gender Working Group meeting.

Draft Agenda:

1. Welcome
2. Environmental Scan and Rapid Review
3. Group Discussion
4. Other Items
4. Adjournment

Folks, welcome to the Sex and Gender Working Group meetings hosted by Canada Health Infoway. Please see below for details.
Topic: Sex and Gender WG Meeting
Time: Second Tuesday of each month at Noon ET/ 9 PT (US and Canada)

Join Zoom Meeting
infoway-inforoute.zoom.us/j/555765225

Meeting ID: 555 765 225
One tap mobile
8557038985,,555765225# Canada Toll-free

Dial by your location
855 703 8985 Canada Toll-free
877 853 5257 US Toll-free
855 880 1246 US Toll-free
Meeting ID: 555 765 225
Find your local number: infoway-inforoute.zoom.us/u/aQ9yk7Jhl

Join by SIP
This email address is being protected from spambots. You need JavaScript enabled to view it.

Join by H.323
162.255.37.11 (US West)
162.255.36.11 (US East)
221.122.88.195 (China)
115.114.131.7 (India Mumbai)
115.114.115.7 (India Hyderabad)
213.19.144.110 (EMEA)
103.122.166.55 (Australia)
209.9.211.110 (Hong Kong)
64.211.144.160 (Brazil)
69.174.57.160 (Canada)
207.226.132.110 (Japan)
Meeting ID: 555 765 225


Contact: Kelly Davison