Infoway Sex-Gender Working Group meeting on Mar 10, 2020 at 9am PT / 12pm ET

Good afternoon folks. Many thanks to our presenters, and many thanks for the fruitful discussion. I have posted notes to the forum and have posted documents to the working group folders:

StatCan presentation:
infocentral.infoway-inforoute.ca/en/resources/docs/sex-gender/sex-gender-presentations

Slide Deck, Agenda and Notes
infocentral.infoway-inforoute.ca/en/resources/docs/sex-gender/sex-gender-meetings

The next Sex and Gender Working Group meeting is scheduled for Tuesday, April 14, 2020 at 9am PT / 12pm ET. Details and links to be posted. As always, please contact myself or Francis for agenda item, or feel free to post to this discussion forum.

March 10, 2020 Sex and Gender Working Group Agenda Item Notes

1. Welcome

2. Presentation – StatCan Centre for Demography: Measuring Gender Diversity in Canada - France-Pascale Ménard)/ Jean-Pierre Séguin

Discussion touched on practices for collecting SO/GI data in census, statistical difficulties in justifying inclusion of sexual and gender diversity data elements and need for collaboration at all levels on this issue. Discussion on practice related to three options in both sex and gender: male, female, intersex and man, woman, non-binary. Discussion about data quality, statistical significance and implications for patient care. StatCan survey will be designed to eliminate risk of false positives, and emphasis will be on lived gender. Use of male/female rather than man/woman for gender is thought to reduce confusion. Will also use Treasury Board policy and evidence in asking a two-part question: sex and gender. Cabinet hasn’t yet met. French translation is an important consideration as the relationship? Is not 1:1. Discussion about sex at birth, and how X and U responses are being treated. Has yet to be confirmed by StatCan. Is likely through imputation of data elements rather than suppression.

3. Group Discussion

Group discussion circled around some distinctions between data quality and statistical analyses and clinical/administrative aspects of sex and gender data elements. Responses can be used as a political response, which affects data quality. Strong recommendation for male, female, intersex for sex and man, woman, non-binary for gender. Some discussion about clinical case for “indeterminate” in data sets, particularly for still births. Inclusivity really important to patient care and also in data sets.

4. Other Business

Dr. Rob McLure, Chair of the HL7 Gender Harmony Project provided some details about that project and invited participation.
See: confluence.hl7.org/display/VOC/The+Gender+Harmony+Project

Dr. Francis Lau discussed CIHR Grant Consultation sessions. First to be held March 24.

5. Adjournment

Good morning folks. Looking forward to our discussion tomorrow.

Agenda:

1. Welcome
2. Collecting SG Info at StatCan
3. Group Discussion
4. Other Items
4. Adjournment

Connection info:
Tuesday, March 10, 2020, 12:00pm - 01:00pm ET

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Meeting ID: 542 316 630

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Meeting ID: 542 316 630

Location : infoway-inforoute.zoom.us/j/542316630
Contact : Kelly Davison

Good morning folks. A gentle reminder about our Sex-Gender Working Group meeting next week. Details below.

Tentative Agenda:

1. Welcome
2. Collecting SG Info at StatCan
3. Group Discussion
4. Other Items
4. Adjournment

Connection info:
Tuesday, March 10, 2020, 12:00pm - 01:00pm ET

Join Zoom Meeting
infoway-inforoute.zoom.us/j/542316630

Meeting ID: 542 316 630

One tap mobile
+16475580588,,542316630# Canada
8557038985,,542316630# Canada Toll-free

Dial by your location
+1 647 558 0588 Canada
855 703 8985 Canada Toll-free
Meeting ID: 542 316 630
Find your local number: infoway-inforoute.zoom.us/u/afHtezQU6

Join by SIP
This email address is being protected from spambots. You need JavaScript enabled to view it.

Join by H.323
162.255.37.11 (US West)
162.255.36.11 (US East)
221.122.88.195 (China)
115.114.131.7 (India)
213.19.144.110 (EMEA)
103.122.166.55 (Australia)
209.9.211.110 (Hong Kong)
64.211.144.160 (Brazil)
69.174.57.160 (Canada)
207.226.132.110 (Japan)
Meeting ID: 542 316 630

Location : infoway-inforoute.zoom.us/j/542316630
Contact : Francis Lau