HL7 Gender Harmony SFCU Issues - More Suggestions for Dec 15 Subgroup Meeting

Folks, here are some more GH ballot SFCU suggestions for you to consider …

1. There are published examples of anatomical inventories from leading practices that we can draw from, e.g.

1a. Fenway Health –Grasso et al. paper academic.oup.com/jamia/article-abstract/28/11/2531/6307172?redirectedFrom=fulltext
1b. LGBTQ Primary Care Toolkit lgbtqprimarycare.com/chapter-9/section-3-documenting-sexual-orientation-and-gender-identity-information/
1c. Alberta Health Services Diversity & Inclusion Council, Advisory Councils Spring Forum Jun 2021 -SOGIE Connect Care (slide 29) - Link

2. If we think SFCU is a feasible interim solution, we may want to change its name to Parameters for Clinical Use (PFCU)?

3. U.S. has published Core Data for Interoperability (USCDI v3) with SFCU - www.healthit.gov/isa/uscdi-data-class/sex-clinical-use

4. Pedersen has published a paper on inclusive imaging intake form with questions on reproductive organs - www.jmirs.org/article/S1939-8654(18)30223-6/fulltext

5. Based on use cases in USCDI v3 and Pedersen’s intake form, we may revise SFCU/PFCU value options to be more meaningful, such as

5a. Apply male-sex reference ranges
5b. Apply female-sex reference ranges
5c. Disregard sex reference ranges
5d. Have internal reproductive organs
5e. Have external reproductive organs
5f. Check status of reproductive organs
5g. Check anatomic inventory for status
5h. Check hormonal inventory for status
5i. Check surgical history for organ status
5j. Free-text comment

6. These options may avoid perception of mislabeling one as female or male by being more context-specific and explicit. What do you think?

Thanks -francis