HL7 Gender Harmony SFCU Issues for discussion on Dec 15 at 230pm ET

Folks, here is some info that you may find useful for the upcoming Gender Harmony Project (GHP) Sex-for-Clinical-Use (SFCU) subgroup meeting on Thursday Dec 15 at 230pm ET via Zoom us02web.zoom.us/j/82612447163

1. GHP presented their GH model in Feb 2022; there is a use case on slide 2 that illustrates how GI and SFCU can be used; see www.healthit.gov/sites/default/files/facas/2022-02-08_IS_WG_Gender_Harmony_Presentation_508.pdf

2. GHP submitted recommendations to U.S. Office of National Coordinator of Health IT (ONC, similar to Infoway) on use of SFCU in labs, imaging, procedures, test, and medications; see www.healthit.gov/isa/uscdi-data-class/sex-clinical-use

3. The recommended GHP SFCU value sets are also listed on pages 4-5 of the GHP responses to ONC dated 2022-03-14; see www.healthit.gov/isa/sites/isa/files/2022-04/HL7_GH_uscdi_response_03142022.pdf

4. The HL7 GH ballot produced 58 SFCU related issues, 36 of them are from Canada posted by RP. I went thru the 36 issues and grouped similar ones to bring the list down to 4 basic issues, which are shown in SFCU-summary PDF; see infocentral.infoway-inforoute.ca/en/resources/docs/sex-gender/4041-gender-harmony-issues-sex-for-clinical-use-by-report-summary-2022-12-09

4a. Issue #1 should SFCU be used: FHIR-39223, 39224, 39225, 39219, 39222, 39221, V2-25427, 24529, 25430, 25432, 25433, 25431
4b. Issue #2 use different name than SFCU: FHIR-39220, V2-25428, OTHER-2631
4c. Issue #3 different/more value options: FHIR-39231, 39220, 39199, 39241, OTHER-2584, 2621
4d. Issue #4 miscellaneous –more general technical/correction/consistency issues

5. I think the main SFCU issues from Canada can be summarized below:

5a. Given HL7 has started to work on the organ/anatomic inventory specs, do we think SFCU is a feasible interim solution or not?
5b. If we think SFCU is a feasible interim solution, do we want to remove the word sex from the name to something like “parameters for clinical use”
5c. If SFCU can be an interim solution, do we want to add/change the value options to be more descriptive?
5d. If SFCU is NOT a feasible interim solution, what do we suggest in its place while waiting for the organ/anatomic inventory specs?

6. I encourage you to review the SFCU-full PDF for more complete description of the issues, as I could easily have missed or misread them; see infocentral.infoway-inforoute.ca/en/resources/docs/sex-gender/4040-gender-harmony-issues-sex-for-clinical-use-by-reporter-full-2022-12-09

Thanks and hope to see you at the Thursday Dec 15 meeting
Francis Lau, on behalf of the UVic-GSSO-EHR team